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Fragile Innocence: A Father's Memoir of His…
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Fragile Innocence: A Father's Memoir of His Daughter's Courageous Journey (edição: 2007)

de James Jr Reston

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282664,655 (3.5)Nenhum(a)
Fragile Innocence is the story of a child devastated by pure chance. This moving narrative of a father's journey to understand and accept the profound changes in his daughter's life is at once memoir, biography, mystery, and drama, all centered around one remarkable young woman who cannot talk or read or understand language, but who has touched almost everyone she has ever met. At eighteen months Hillary Reston, a happy, healthy toddler, was struck by a remarkably high fever. On the advice of her doctor, her parents, James Reston, Jr., and Denise Leary, administered Tylenol and anxiously waited for the fever to subside. Five days later it did, but the damage was done. Over the course of the next five months their bubbly, highly verbal child was radically and irrevocably changed. Worse yet, no doctor could explain what evil and still unidentified force had stolen Hillary's ability to speak or understand language, hurtled her into a seemingly endless cycle of seizures, destroyed her kidneys, and taken her to the very brink of death. For her parents, discovering what had happened to their child and how to assure the quality of her life became an obsession. This quest for answers would take them from the nation's hospitals to the office of a pioneering geneticist in Texas and the vaulted halls of the National Institutes of Health. This very intimate story also personalizes some of the most daunting ethical issues of medicine that society faces today, including stem cell research, animal organ transplantation, diagnosis with the Human Genome Map, and reproductive and therapeutic cloning. Hillary gives these immensely complicated issues a human face, and they are pondered byReston as a reporter, a thinker, and a father. In Fragile Innocence author James Reston, Jr., invites us inside his family, candidly sharing the joys and sorrows of raising Hillary. This is a book about the first twenty-one years of a child named Hillary. It tells of her battle to live and our family's struggle to help her survive as best we could, after an evil and still unidentified force robbed her of her language at the age of two, hurtled her into a seemingly endless cycle of brain storms, destroyed her kidneys, and took her to the very brink of death. That is the first half of the story, when life itself was at stake. --From the Preface… (mais)
Membro:rumhud
Título:Fragile Innocence: A Father's Memoir of His Daughter's Courageous Journey
Autores:James Jr Reston
Informação:Three Rivers Press (2007), Paperback, 272 pages
Coleções:Sua biblioteca
Avaliação:****
Etiquetas:Nenhum(a)

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Fragile Innocence: A Father's Memoir of His Daughter's Courageous Journey de James Reston Jr.

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While I have to agree with some other reviewers who found Reston's account of his daughter's struggle against some pretty awful circumstances to be curiously bloodless at times, it is nevertheless a powerful story, well-told, of a family's fight for their beloved little girl. Reston's struggle against a sometimes incompetent medical world was particularly vivid to me, particularly in how, at every turn, his family was faced with unwavering "expert" diagnostic conclusions, many of which were ultimately wrong and occasionally to the extreme detriment of his daughter. This is quite simply a very important book, and one that I'm glad I finally got around to reading.

(In the interest of full disclosure, I should mention that I read this book specifically because I was curious as to how Reston's narrative would compare to my own in my book, published about two years later. As a result, I suspect that came into this book predisposed to like it.) ( )
  rumhud | May 8, 2008 |
This book is popping up everywhere. Terry Gross interviewed Reston a few weeks ago, and Entertainment Weekly ran a long review. Reston writes about his daughter, who has an unknown disease that has left her without the ability to speak or function above a 9-month-old level. It's intriguing. It's also very flawed, in my opinion. Reston carefully documents the name of every doctor and teacher, but never mentions any at home help (yet makes it clear that he and his wife work full time, and believe it's impossible to leave the child alone). He also makes huge statements and completely fails to back them up in any way. His nervous breakdown gets 2 paragraphs, leaving one to wonder if it was just a figure of speech, or an actual episode? I felt that times that the book was a padded version of his daughter's medical record. ( )
  aliciamalia | Oct 8, 2007 |
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Fragile Innocence is the story of a child devastated by pure chance. This moving narrative of a father's journey to understand and accept the profound changes in his daughter's life is at once memoir, biography, mystery, and drama, all centered around one remarkable young woman who cannot talk or read or understand language, but who has touched almost everyone she has ever met. At eighteen months Hillary Reston, a happy, healthy toddler, was struck by a remarkably high fever. On the advice of her doctor, her parents, James Reston, Jr., and Denise Leary, administered Tylenol and anxiously waited for the fever to subside. Five days later it did, but the damage was done. Over the course of the next five months their bubbly, highly verbal child was radically and irrevocably changed. Worse yet, no doctor could explain what evil and still unidentified force had stolen Hillary's ability to speak or understand language, hurtled her into a seemingly endless cycle of seizures, destroyed her kidneys, and taken her to the very brink of death. For her parents, discovering what had happened to their child and how to assure the quality of her life became an obsession. This quest for answers would take them from the nation's hospitals to the office of a pioneering geneticist in Texas and the vaulted halls of the National Institutes of Health. This very intimate story also personalizes some of the most daunting ethical issues of medicine that society faces today, including stem cell research, animal organ transplantation, diagnosis with the Human Genome Map, and reproductive and therapeutic cloning. Hillary gives these immensely complicated issues a human face, and they are pondered byReston as a reporter, a thinker, and a father. In Fragile Innocence author James Reston, Jr., invites us inside his family, candidly sharing the joys and sorrows of raising Hillary. This is a book about the first twenty-one years of a child named Hillary. It tells of her battle to live and our family's struggle to help her survive as best we could, after an evil and still unidentified force robbed her of her language at the age of two, hurtled her into a seemingly endless cycle of brain storms, destroyed her kidneys, and took her to the very brink of death. That is the first half of the story, when life itself was at stake. --From the Preface

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