Robert Rummel-Hudson

Story about a cute little girl who has a rare neurological disorder that renders her almost completely non-verbal. Story is about her father's struggle to find her diagnosis and then his even greater struggle to help her communicate. It hammers home the point that you really need to be your own advocate and that trusting authority - doctors, teachers, social workers, etc. really isn't always the best option. Also highlights the good nature of people in regards to how many readers of his blog donated money on more than one occasion to help out with Schuyler's medical bills and her assisted communication devices. Library book not purchase unless you read his blog and have an interest already.… (mais)

I have always imagined the acceptance process of discovering your biological child has differences, like Schuyler's monster, would be incredibly difficult. Rob did an amazing job of bringing the reader through his varying stages of grief and non-acceptance. What I love about this book and his parenting, is that he never accepts that Schuyler's disability defines her. He does an excellent job capturing that only Schuyler can define who she will be. I "met" Rob on twitter and, like his blog readers, fell in love with his daughter's gigantic personality. I hope there is a sequel. Or series.… (mais)

This book wasn't what I expecting at all, it surprised me more than anything. It leads you from the birth of Schuyler up to the age of 7. And what we get is the uphill battle that this family has faced in getting an 'actual diagnosis' of Bilateral Perisylvian Polimicrogyria to then fighting for her to have a way to communicate. I'm shocked that this proved to be so difficult and they had to be persistent in order to get the aids that Schuyler needed.
I enjoyed learning about Schuyler's perseverance and happy way that she seems to view the world. And its lovely that at the end of the book, we find that she is doing okay, well good actually. She appears to have a fighting, feisty personality which I loved. Her parents are still a little bit in the world of the unknown but they will try their hardest - even moving, to make sure that her needs are met.… (mais)